I was thinking about words to adequately describe my current state of mind.
A few that popped up were:
Overwhelmed. Brain fog. Fight or flight.
But the word that stood out the most was:
ACTION.
As in what needs to happen for me to live.
The steps I must take to advertise my life.
Because that is what I'm doing. I am advertising to you (the reader) about me (the sick individual) in an effort to have someone take action.
While I appreciate positive thoughts, prayers and good vibes only...they don't always result in action.
I read a great article the other day written by a fellow chronically ill warrior. And she had some really good things to say about action in motion when a friend or loved one is very sick.
Here are a few tangible things that you can do if you are so inclined to help me (and my family) in this challenging time:
1) Cook a meal- I am often too fatigued to cook and my family still loves to eat! Frozen casseroles or other dishes are such a help to have on hand. I have many dietary restrictions now I can discuss with you.
2) Volunteer your time! Sometimes I need a ride to an appointment or a ride home depending upon my husband's work schedule. It's a real challenge to juggle it all.
3) Mail a card or letter! I spend most of my days at home sleeping or just watching TV or reading these days. I'd love to hear from you!!
4) Send a little something to my kid or husband. They both work so hard to take care of me. I know they'd love a little surprise in the mail too.
5) Finally, don't let my situation make you feel scared of your own mortality.
I need a kidney. I need a lifesaving donation.
If you have any questions about living donation (if you're even vaguely considering it) ask me. Donating a kidney is actual a pretty simple surgery and the down time is only about one week.
You can reach me at szopfi@gmail.com
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